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New Diagnosis of Prader-Willi syndrome?

FPWR was founded by parents of children with Prader-Willi syndrome (PWS). We know what you are experiencing! Please know that much progress in research is being made to help children with PWS.

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Rachel's Corner

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Recent posts

Type	Title	Author	Replies	Last Post
Page	Hike the Hill	Susan Monahan	0	1 week 6 days ago
Page	Lead the Way...Change Their Future	Susan Monahan	0	1 week 6 days ago
Page	Dragon Dash	Jeff Porter	0	6 weeks 6 days ago
Event	4th Annual Dragon Dash of Castle Hills	McGhee006	0	7 weeks 4 days ago
Event	4th Annual Dragon Dash of Castle Hills	McGhee006	0	7 weeks 4 days ago
Press Release	One Million Dollars in Prader-Willi Research Funded by FPWR	Jeff Porter	0	8 weeks 6 days ago
Event	4th Annual Dragon Dash of Castle Hills (5k / 1mile walk run)	McGhee006	0	9 weeks 1 day ago
Event	4th Annual Dragon Dash of Castle Hills (5k / 1mile walk run)	McGhee006	0	9 weeks 1 day ago
Event	4th Annual Dragon Dash of Castle Hills (5k / 1mile walk run)	McGhee006	0	9 weeks 1 day ago
Blog entry	FPWR Reaches $1 Million Mark in Funding PWS Research	Rachel Tugon	0	14 weeks 19 hours ago
grant	Activation of the maternal allele at the PWS/AS domain as a potential therapeutic approach (year 2)	Theresa Strong	1	14 weeks 1 day ago
grant	Exploring the potential mitochondrial dysfunction in mouse models of Prader-Willi syndrome	Theresa Strong	0	14 weeks 4 days ago
grant	The risk of early onset Alzheimer's disease in Prader-Willi syndrome	Theresa Strong	0	14 weeks 4 days ago
grant	R-Loop structures maintain epigenetic imprints at the Prader-Willi imprinting center	Theresa Strong	0	14 weeks 4 days ago
grant	An improved mouse model of Prader-Willi syndrome	Theresa Strong	0	14 weeks 4 days ago
grant	Behavioral treatment of obsessive-compulsive symptoms in youth with Prader-Willi syndrome: A pilot project	Theresa Strong	0	14 weeks 4 days ago
Press Release	Foundation for Prader-Willi Research Partners with the Salk Institute on Prader-Willi Syndrome Research	Jeff Porter	0	15 weeks 1 day ago
Blog entry	Cicada Power	Rachel Tugon	0	15 weeks 1 day ago
Event	Second Annual Ballpark Security Charities' Golf Outing	Rachel Tugon	0	20 weeks 3 days ago
Page	2008 FPWR Conference: Transportation Information	Jeff Porter	0	20 weeks 4 days ago
Page	Lead the Way…Change Their Future! Hotel Accomodations	Jeff Porter	0	20 weeks 4 days ago
Page	2008 FPWR Conference Agenda	Jeff Porter	0	20 weeks 4 days ago
Page	2008 FPWR Conference: CAMP FPWR Information	Jeff Porter	0	20 weeks 4 days ago
Blog entry	Adrenal Insufficiency and PWS	Theresa Strong	0	27 weeks 2 days ago
Page	Beaver Lake Dash	admin	0	27 weeks 5 days ago

Advocate for FPWR!

Our Annual Conference and our first ever Hike the Hill events were a success, but there is much more to be done!.

We need you to act now to help us get enough co-sponosors for HR 1386 to bring it up for a VOTE! support FPWR's prader-willi advocacy efforts today!

Look here for an update on our conference!

Upcoming Events

Sat Nov 1 2008
ROCHESTER HILLS, MI Brody's Ball 2008

Sun Nov 2 2008
NEW YORK CITY New York City Marathon

Sat Nov 15 2008
PHILADELPHIA, PA 3rd Annual Beef n Beer

Sun Nov 16 2008
Mar Vista Walk

VIEW THE CALENDAR

FPWR Photo Gallery

Golf Signs

Join FPWR

Learn about the FPWR and how you can help further our cause. We are a dynamic group of individuals with a focus on helping children with Prader-Willi syndrome.

» JOIN US TODAY!